TREK FOR SMS
A Fundraising Expedition Supporting Rare Families
Trek for SMS is a collaborative fundraising campaign created to support PRISMS (Parents and Researchers Interested in Smith–Magenis Syndrome). This expedition brings together mothers, supporters, and advocates to raise funds for research and family support systems serving individuals living with Smith–Magenis Syndrome (SMS).
SMS is a rare genetic condition affecting approximately 1 in 15,000 children born, characterized by developmental disability, sleep disturbance, significant behavioral challenges, and medical complications involving the lungs, heart, kidneys, and brain. Families impacted by SMS often provide lifelong care while navigating limited resources and awareness.
The Trek
In January 2027, a small international team will undertake a high-altitude trek in Tanzania in partnership with Tazama, an ethical, community-centered trekking company. The climb will include three mothers of adult children with Smith–Magenis Syndrome—Cally Bauman (Australia), Connie Bessette (New Hampshire), and Gail Reiner (California)—joined by a small group of supportive participants.
Why We Trek
This expedition is not about conquest—it is about commitment. Each step taken helps fund PRISMS’ work in:
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Advancing SMS research
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Providing education and resources for families
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Strengthening long-term support networks for children and adults living with SMS
Who This Is For
Trek for SMS invites support from anyone connected to or moved by:
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Smith–Magenis Syndrome and rare disorders
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Children and adults with developmental disabilities
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Families, caregivers, clinicians, and advocates
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Those who believe collective action can create lasting impact
Together, we trek for awareness.
We trek for research.
We trek for families—side by side.
MORE INFORMATION TO COME.